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The NIH was the first federal agency to impose a data sharing requirement in 2003.TheNIH Data Sharing Policy encourages NIH-funded researchers to share their final research data for use by other researchers in a timely way (i.e., no later than the acceptance for publication of the main findings from the final data set). The Policy expects applicants requesting $500,000 or more in direct costs in funding from NIH for research for any one year to include a data sharing plan or state why data sharing is not possible. There are several different data sharing policies in effect for the NIH, IC division, and at the program level. This chart provides a summary and link to each of them.
whether and how data will be made available to others, including provisions for protection of privacy, confidentiality, security, intellectual property, or other rights as appropriate
data to be shared (e.g., genomic, clinical, or images), the expected timeline for when the data will be available, data formats, the format of the final data set, any query and/or analytic tools that will be provided, and the mode of data sharing (e.g., through a data archive or enclave or under the researcher’s own auspices by mailing a disk or posting data on an institutional or personal website)
procedures to request the data, and any data sharing agreements including the criteria for accessing data and any limitations placed on the use of data.
Do you have any questions or need assistance understanding the NIH requirements? We can help you with understanding funder requirements, especially for some of the programs which have specific requirements, and drafting and reviewing your data management plan. Contact us at email@example.com.